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October 11, 2005

Waiting Game Almost Over

waitinggame.jpg

Tomorrow is finally my follow up appointment with "TheDrugDealer." As you may recall, back in Episode # 8 of AS THE TONSIL FALLS, I was prescribed 4 new drugs, told to take a sleep study, and set up for 18 e-stem treatments. The first two days on the drugs, I think could have slept about 20 hours a day, but instead I went to work and sat there with my thumb and forefinger holding my left eyeball open so it wouldn't be so obvious that I was asleep.

The next day I called and left the first of a bazillion messages for the doctor that I was unable to take these medicines as prescribed since I had work and school that required me to be able to still be able to function. 22 days later they finally called me back, and their response was, she wants you to take the medicines as prescribed. HELLO! I had found a way I could take the medicines and still partly function, but I don't like the way I feel on the medicines.

I started going to the e-stem treatments twice a week and it seems like the numbness in my arms and hands has gotten worse and has even migrated to my legs and feet. I am losing my balance and my next door neighbor is often laughing at me because I cant seem to walk a straight line and I seem to be tripping over my own two feet.

The night of the sleep study I fell in the parking lot of the hospital during a rain storm. My knee started hurting immediately but my right shoulder waited until Friday to start bothering me. By last Tuesday it was hurting so bad I could barely take off / put on my bra. I called the neurologist and they referred me to a PCP, since I didnt have one, and they set me up for an appointment for this morning.

Last Tuesday I had the Nerve Conduction Study. I haven't heard a word about that or the sleep study ... so needless to say, we have a lot to talk about in the followup tomorrow morning. My parents are coming up to go to the appointment with me. One of the major points I want to get across is the fact that we have now wasted 6 weeks, I'm on drugs that make me feel stupid and unable to concentrate, and dizzy.. almost like I have vertigo. I went to this doctor to feel better and I can with 100% confidence say that I feel worse now than I did before I found out I had Arnold Chiari on August 10th.

The doctor today, "TheInternist" did a complete physical, took blood because the dingbats over at "TheDrugDealer's" office took too long to send the report to his office so I had to give up 3 more vials of blood. I think I also mentioned that I fell in the parking lot of the hospital walking into the sleep study. "TheInternist" sent me for an X-Ray on both my left knee and right shoulder and I have another freaking MRI scheduled for both knee & shoulder on Friday.

I am just so tired of waiting. I am ready to nicely go in there in the morning and tell "TheDrugDealer" that I feel like CRAP on these drugs. I want to know what the nerve study and the sleep study said. I want to know what the MRI on Friday is gonna say and I haven't even had it yet. I'm ready for the waiting game to be over with.

Posted by FutureFoodTVStar at October 11, 2005 01:40 PM

Comments


Damn girl you are going through some tough times! Do they have ANY idea what may
be the cause and cure of your problem? Obviously the drugs are not working very
well. Please get better and achieve your dreams ASAP!

Posted by: Jeff Vachon at October 12, 2005 10:01 AM


I'm ready, too! I wish these doctors of yours could get their shit together!

OMG - I still have your PC stuff!
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Posted by: Kami at October 12, 2005 10:12 AM

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