« Comcast SUCKS! | Main | There Is A New Game In Town »

April 24, 2006

If You Are Interested

In the past couple of weeks, Chiari, the condition that I have, has been featured on Mystery Diagnosis on the Discovery Channel.

One of the ladies in my support group has graciously offered her website up as a place to download the video if you would like to watch it.

I have heard from some friends and family that I am taking this doctor thing too far. Yes, I have seen 3 neurosurgeons and 3 neurologist. I have had 3 MRIs, yet I haven't had the MRI that truly tests for the flow of cerebral-spinal fluid between my head and my spinal cord. But I have yet to see a doctor who has offered up a solution to ease the pain, and let me tell you 17 concurrent prescriptions isn't it.

I have read a lot about this condition and I know how hard it is to get a doctor to listen to you. I'm tired of hearing, "it's in your head", "see a shrink" or "get used to the pain."

If you download this video and watch it, you will see that the mother in the story took her daughter to doctor after doctor after doctor. She felt that she wasn't getting what she needed out of them. And in the end, they say that the girl's MRI didn't show the extent of what was going on and the doctor's didn't know until they opened her up.

To watch the video:

At the bottom you will see a big yellow link that says Chiari Video. This will download the video to your computer. There is also a link (about two paragraphs above the video link) to a player that you may have to download if the video will not play on any of the media players you have on your computer.

If you happen to download it and watch it, please let me know what you think.

Posted by FutureFoodTVStar at April 24, 2006 02:37 PM

Comments

I feel for you. I can only imagine your frustrations! I don't have any advice but just know that I'm here to listen.

Posted by: Sheri at April 24, 2006 10:24 PM

Post a comment




Remember Me?