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January 16, 2006

Made An Appointment With A New Doctor

Chiari_Pin.jpg

For the sake of any new readers I might have, I will go back and give a little background information. On August 10th and August 16th, 2005 I had two MRIs done and was diagnosed with Arnold Chiari Malformation I.

I went back to work and got online. I found the online support group for Chiari and I started reading the documented symptoms. All of a sudden a lightbulb went off. I'm not crazy! My brain is just falling out of my skull.

It was about this time that all my doctors appointments and drugs started. It is all documented in the archives starting in August.

I saw two neurosurgeon's who did not believe that my condition was bad enough for surgery. I was referred to a neurologist who I have nicknamed "TheDrugDealer" and I truly believe that her entire practice involves pushing the drugs that the pharmaceutical reps bring her.

I have been miserable for 4 months now. When you go to a doctor, you are supposed to feel better, not worse. The first drugs she gave me really did a number on me. The rest of the drugs have caused side effects that are not comfortable. And if you read my post from Thursday, they obviously are not helping my migraines at all.

My New Years Resolution #5 was to Get Healthy. Part of this included finding new doctors. There has recently been a new Neurosurgeon added to the WAMCA website of recommended doctors that is actually in Dallas. I am going to see him Thursday morning.

I am not fishing for surgery. Having a little scar tissue taken out of my knee is one thing, having my neck sliced open, my skull shaved off, a piece of cow skin sewed in to hold up my brain and my top two vertebre fused together does not sound like fun to me. I just want to hear the opinion of someone who apparently has experience with my condition. If I do, I will survive. I have a lot of friends who are on my side and only want me to feel better. The picture above of the purple ribbon with the zipper on it is the Awareness Pin for Arnold Chiari. After the surgery, you apparently have a scar that looks like a Zipper.

If I don't need surgery, great! But, if that is the case... I want this new doctor to actively work with me to find a new neurologist who isn't going to give me drug after drug with no consideration to the side effects or how they will counteract with each other. Especially I want a neurologist who at least knows enough about the drugs they prescribe to not give them to someone who has noted on their chart that they are ALLERGIC to the ingredients.

So, here we are at the new 2006 Season of "As The Tonsil Falls". 1st Episode is Thursday, January 19th at 8:45am. Any drama will be posted.

Posted by FutureFoodTVStar at January 16, 2006 12:10 PM

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